Co-developing a digital mindfulness- and acceptance-based intervention for endometriosis management and care: a qualitative feasibility study.
BMC women's health April 16, 2025 Nina Maindal, Ulrik Bak Kirk, Karina Ejgaard Hansen 4 citations
A mindfulness- and acceptance-based digital self-management program called MY-ENDO, co-developed with women who have symptomatic endometriosis, was evaluated as positive by participants. The program aims to help women manage negative physical, psychological, and social consequences of the condition. Based on 35 interviews with seven participants, analysis identified two crucial parts—'knowledge of the disease' and 'management of the disease' with eight related subthemes—plus a generic theme of 'motivation and alliance'. Women valued that the program was specifically tailored to endometriosis and developed with patient input. Having a contact person was important for maintaining motivation, which has implications for clinical implementation.