Locked-in syndrome: A qualitative study of a life story.
Brain and behavior August 1, 2024 Mona Lisa Hordila, Cristina García-bravo, Domingo Palacios-Ceña et al. 2 citations
A compelling narrative emerges from the life history of a 54-year-old man with locked-in syndrome (LIS) and his 50-year-old wife. Through qualitative interviews and autobiographical documents, five key themes were identified: navigating new realities, care and rehabilitation processes, communication challenges, the therapeutic power of writing, and the importance of personal autonomy. The couple emphasized the critical role of family and friends in their journey, highlighting how effective communication and medical support significantly aided their acceptance and adaptation to this profound life change.