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Juliana Onwumere

National Institute for Health Research, Maudsley Biomedical Research Centre, South London and Maudsley, London, UK.

1 paper in the library · 225 citations · publishing 2022

Papers

The lived experience of psychosis: a bottom-up review co-written by experts by experience and academics.

World psychiatry : official journal of the World Psychiatric Association (WPA) June 1, 2022 Paolo Fusar-Poli, Andrés Estradé, Giovanni Stanghellini et al. 225 citations

Psychosis unfolds through distinct stages, each with its own core existential experiences. Early phases (premorbid and prodromal) involve loss of common sense, perplexity, lack of immersion in the world, heightened salience, a feeling that something important is about to happen, perturbation of the sense of self, and a need to hide inner turmoil. The first episode brings transitory relief from delusions, intense self-referentiality, permeated self-world boundaries, internal noise, and dissolution of self with social withdrawal. Later stages (relapsing and chronic) involve grieving losses, feeling split, and struggling to accept inner chaos, a new self, diagnosis, and uncertain future. Treatment experiences include both positive and negative aspects, with recovery understood as reconstructing personhood and re-establishing bonds toward meaningful goals.